孤獨癥譜系障礙兒童的家庭負擔及康復治療研究進展_West China Medical Journal

Authors：

 楊濤 , 王埡 , 劉娟 , 楊麗 ,  黃雪花

四川大學華西醫院心理衛生中心, 成都 610041;

Corresponding?author：

楊濤, Email: 340383545@qq.com; 黃雪花, Email: huangxuehua10@163.com

Keywords：

孤獨癥譜系障礙; 疾病負擔; 康復

DOI：

10.7507/1002-0179.201600310

Video：

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Abstract Full text Figures/Tables Video References Cited by

孤獨癥譜系障礙（ASD）是一類以社會交往障礙、交流障礙、興趣狹窄和刻板重復的行為方式為特征的心理發育障礙性疾病。現從 3 個角度對 ASD 兒童家庭負擔及康復治療研究進展進行綜述:以點來看， ASD 兒童對家庭有嚴重影響；以橫切面看， ASD 兒童各階段的康復需要多方的參與；以時間軸縱看， ASD 兒童的康復計劃是隨著成長動態變化的過程。期望以上內容能為相關領域未來的研究提供參考。

Citation： 楊濤, 王埡, 劉娟, 楊麗, 黃雪花. 孤獨癥譜系障礙兒童的家庭負擔及康復治療研究進展. West China Medical Journal, 2016, 31(6): 1147-1151. doi: 10.7507/1002-0179.201600310 Copy

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1. Garrido D, Carballo G, Franco V, et al. Language comprehension disorders in non-verbal children with autism spectrum disorders and their implications in the family quality of life[J]. Rev Neurol, 2015, 60(5) :207-214.
2. Bagatell N, Mason AE. Looking backward, thinking forward: occupational therapy and autism spectrum disorders[J]. OTJR (Thorofare N J), 2015, 35(1) :34-41.
3. Yu TW, Chahrour MH, Coulter ME, et al. Using whole-exome sequencing to identify inherited causes of autism[J]. Neuron, 2013, 77(2) :259-273.
4. 趙冬梅, 楊良政, 張艷卿, 等. 培訓-家庭康復訓練模式治療兒童孤獨癥療效觀察[J]. 中國康復醫學雜志, 2014, 29(3) :260-262.
5. 李迎春. 關注孤獨癥患兒父母的心理問題提高患兒家庭生活質量[J]. 中國醫藥指南, 2013, 11(17) :365, 366.
6. 陳瑜, 張寧, 裴濤. 國外孤獨癥兒童家庭應激研究現狀[J]. 中國特殊教育, 2007(10) :66-70.
7. 夏薇, 王佳, 孫禮, 等. 孤獨癥患兒家庭環境及父母生存質量分析[J]. 中國學校衛生, 2010, 31(2) :136-137, 140.
8. 段桂琴, 姚梅玲, 靳彥琴. 孤獨癥患兒家庭疾病負擔和家長的應對方式[J]. 中國婦幼保健, 2013, 28(2) :278-280.
9. 陳瑜, 裴濤, 張寧. 孤獨癥患兒家庭應激狀況調查[J]. 中國健康心理學雜志, 2011, 19(12) :1419-1421.
10. 吉彬彬, 易容芳, 孫玫, 等. 孤獨癥兒童照顧者健康相關生活質量與家庭功能的相關性[J]. 廣東醫學, 2012, 33(15) :2327-2329.
11. Smith LE, Seltzer MM, Greenberg JS. Daily health symptoms of mothers of adolescents and adults with fragile x syndrome and mothers of adolescents and adults with autism spectrum disorder[J]. J Autism Dev Disord, 2012, 42(9) :1836-1846.
12. Ruiz-Robledillo N, Moya-Albiol L. Lower electrodermal activity to acute stress in caregivers of people with autism spectrum disorder: an adaptive habituation to stress[J]. J Autism Dev Disord, 2015, 45(2) :576-588.
13. Foody C, James JE, Leader G. Parenting stress, salivary biomarkers, and ambulatory blood pressure:a comparison between mothers and fathers of children with autism spectrum disorders[J]. J Autism Dev Disord, 2015, 45(4) :1084-1095.
14. Parish SL, Thomas KC, Williams CS, et al. Autism and families' financial burden:the association with health insurance coverage[J]. Am J Intellect Dev Disabil, 2015, 120(2) :166-175.
15. 王佳, 于聰, 孫彩虹, 等. 孤獨癥患兒236名家庭疾病負擔狀況調查[J]. 中國學校衛生, 2010, 31(2) :138-140.
16. 王佳, 曹孟儒, 周雪, 等. 孤獨癥患兒就診及家庭養護現狀調查[J]. 中國兒童保健雜志, 2010, 18(10) :757-760.
17. Cidav Z, Marcus SC, Mandell DS. Implications of childhood autism for parental employment and earnings[J]. Pediatrics, 2012, 129(4) : 617-623.
18. 楊昱, 王曼. 學齡前孤獨癥兒童家庭的職業和經濟負擔調查[J]. 中國臨床心理學雜志, 2014, 22(2) :295-297, 361.
19. Ou JJ, Shi LJ, Xun GL, et al. Employment and financial burden of families with preschool children diagnosed with autism spectrum disorders in urban China:results from a descriptive study[J]. BMC Psychiatry, 2015, 15(1) :3.
20. 熊妮娜, 楊麗, 于洋, 等. 孤獨癥、肢體殘疾、智力殘疾兒童家庭經濟負擔調查[J]. 中國康復理論與實踐, 2010, 16(8) :785-788.
21. Hayes SA, Watson SL. The impact of parenting stress:a metaanalysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder[J]. J Autism Dev Disord, 2013, 43(3) :629-642.
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