Clinical study on the management of children with epilepsy based on WeChat platform_Journal of Epilepsy

Authors：

TANG Qianqian , CHEN Rong , LUO Shuzhen ,  CHEN Yanhui

Union Clinical Medical College, Fujian Medical University, Fuzhou 350001, China;

Corresponding?author：

CHEN Yanhui, Email: 893323606@qq.com

Keywords：

Epilepsy; Disease management; WeChat platform; Children

DOI：

10.7507/2096-0247.20180022

Video：

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Objective To explore the feasibility and clinical effect of management of children with epilepsy based on WeChat platform. Methods The WeChat platform for management of children epilepsy was designed according to the idea of the management of chronic diseases. The objective and control groups were investigated by the case-control study. Eighty children with epilepsy who took part in the platform were served as the experimental group. At the same time, 80 children with epilepsy who did not take part in the platform were served as the control group. The questionnaire of basic conditions and users’ perceived acceptance and usage of the platform designed by ourselves were used to collect related information. Results Sixty parents of children with epilepsy continuously used the platform and among them 48 parents (80.0%) had high satisfaction degree of the platform. The factors which affected the satisfaction degree of the platform among basic conditions included whether the users were busy, the comprehensive degree of knowledge about epilepsy before they took part in the study and the degree of taking medicine on time(P<0.05).There were no differences in satisfaction degree among different children sex, residence, parents’ sex, education level, approaches and willingness of knowledge acquisition(P>0.05). Follow-up of 60 children with epilepsy who had been in the platform for 6 months showed total effective rate was 96.7%, while the total effective rate of the control group was 81.4%. Conclusions Management of children with epilepsy based on WeChat platform is feasible and well accepted. Not only does it contribute to standard long-term management of children epilepsy and health education, but also it improves the efficiency of clinical treatment. It is a new way of the management of children with epilepsy.

Citation： TANG Qianqian, CHEN Rong, LUO Shuzhen, CHEN Yanhui. Clinical study on the management of children with epilepsy based on WeChat platform. Journal of Epilepsy, 2018, 4(2): 106-111. doi: 10.7507/2096-0247.20180022 Copy

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2.	馮文. 我國兒科醫療服務狀況分析. 中國醫院, 2012, 116(8): 19-21.
3.	兒童癲癇長程管理專家共識. 中華兒科雜志, 2013, 51(9): 699-703.
4.	唐丹妮, 方榮華, 馬青, 等. 微信平臺在高脂血癥患者治療依從性中的實踐效果研究. 華西醫學, 2014, 29(5): 838-840.
5.	程秀麗, 劉嚴迪, 李菲. 基于微信平臺多媒體形式的延續護理在糖尿病患者教育中的應用. 國際老年醫學雜志, 2014, 35(5): 214-216.
6.	Engel J Jr. A proposed diagnostic scheme for people with epileptic seizures and with epilepsy: report of the ILAE Task Force on Classification and Terminology. Epilepsia, 2001, 42(6): 796-803.
7.	孫建軍, 成穎, 柯青. TAM模型研究進展——模型演化. 情報科學, 2007, 25(8): 1121-1127.
8.	鄭磊. 微信用戶采納影響因素研究. 北京: 北京郵電大學, 碩士學位論文, 2013.
9.	曾明珠, 鄭淑鵬. 用藥日記對癲癇患者服藥依從性影響的探討. 福建醫藥雜志, 2013, 35(2): 174-175.
10.	Liu J, Liu Z, Zhang Z, et al. Internet usage for health information by patients with epilepsy in China. Seizure, 2013, 22(9): 787-790.
11.	張曉飛. 基于現狀偏差理論的在線醫療服務采納阻礙因素研究. 哈爾濱: 哈爾濱工業大學, 碩士學位論文, 2014.
12.	張潔. 愛心、信心、耐心: 兒童癲癇長程管理的關鍵. 中華醫學信息導報, 2013, 28(12): 16-17.
13.	Mittan RJ. Psychosocial treatment programs in epilepsy: a review. Epilepsy Behav, 2009, 16(3): 371-380.
14.	Siqueira NF, Oliveira FL, Siqueira JA, et al. In adolescents with epilepsy, high scores of anxiety and depression are associated with occurrence of seizures in public places. Arquivos De Neuro-psiquiatria, 2015, 73(3): 205-211.
15.	Austin JK, Shafer PO, Deering JB. Epilepsy familiarity, knowledge, and perceptions of stigma: report from a survey of adolescents in the general population. Epilepsy Behav, 2002, 3(4): 368-375.
16.	Hixson JD, Barnes D, Parko K, et al. Patients optimizing epilepsy management via an online community: the POEM Study. Neurology, 2015, 85(2): 129-136.
17.	Tattersall RL. The expert patient: a new approach to chronic disease management for the twenty-first century. Clinical Medicine, 2002, 2(3): 227-229.
18.	趙敬, 李貝. 微信公眾平臺發展現狀初探. 新聞實踐, 2013, 2013(8): 8-10.
19.	詹恂, 嚴星. 微信使用對人際傳播的影響研究. 中國傳媒大學學報, 2013, 2013(12): 112-117.
20.	The Statistics Portal :Number of monthly active WeChat users from 2nd quarter 2011 to 2nd quarter 2016(in millions). http://www.statista.com/statistics/255778/number-of-active-wechat-messenger-accounts/.Accessed 2016.
21.	Snape D, Wang W, Wu J, et al. Knowledge gaps and uncertainties about epilepsy: findings from an ethnographic study in China. Epilepsy Behav, 2009, 14(1): 172-178.
22.	Wang W, Zhao D, Wu J, et al. Changes in knowledge, attitude, and practice of people with epilepsy and their families after an intervention in rural China. Epilepsy Behav, 2009, 16(1): 76-79.
23.	何小敏, 黃偉僑, 容穎慈. 規范藥物治療兒童癲癇的重要性. 中國實用醫藥, 2009, 4(36): 44-45.
24.	Faught RE, Duh M, Weiner J, et al. Nonadherence to antiepileptic drugs and increased mortality: findings from the RANSOM Study. Neurology, 2008, 71(20): 1572-1578.
25.	Faught RE, Weiner J, Guérin A, et al. Impact of nonadherence to antiepileptic drugs on health care utilization and costs: findings from the RANSOM study. Epilepsia, 2009, 50(3): 501-509.
26.	何小敏, 黃偉僑, 容穎慈. 規范藥物治療兒童癲癇的重要性. 中國實用醫藥, 2009, 4(36): 44-45.

1. 秦炯. 關注癲癇兒童的精神行為障礙. 中國兒童保健雜志, 2010, 18(4): 272-274.
2. 馮文. 我國兒科醫療服務狀況分析. 中國醫院, 2012, 116(8): 19-21.
3. 兒童癲癇長程管理專家共識. 中華兒科雜志, 2013, 51(9): 699-703.
4. 唐丹妮, 方榮華, 馬青, 等. 微信平臺在高脂血癥患者治療依從性中的實踐效果研究. 華西醫學, 2014, 29(5): 838-840.
5. 程秀麗, 劉嚴迪, 李菲. 基于微信平臺多媒體形式的延續護理在糖尿病患者教育中的應用. 國際老年醫學雜志, 2014, 35(5): 214-216.
6. Engel J Jr. A proposed diagnostic scheme for people with epileptic seizures and with epilepsy: report of the ILAE Task Force on Classification and Terminology. Epilepsia, 2001, 42(6): 796-803.
7. 孫建軍, 成穎, 柯青. TAM模型研究進展——模型演化. 情報科學, 2007, 25(8): 1121-1127.
8. 鄭磊. 微信用戶采納影響因素研究. 北京: 北京郵電大學, 碩士學位論文, 2013.
9. 曾明珠, 鄭淑鵬. 用藥日記對癲癇患者服藥依從性影響的探討. 福建醫藥雜志, 2013, 35(2): 174-175.
10. Liu J, Liu Z, Zhang Z, et al. Internet usage for health information by patients with epilepsy in China. Seizure, 2013, 22(9): 787-790.
11. 張曉飛. 基于現狀偏差理論的在線醫療服務采納阻礙因素研究. 哈爾濱: 哈爾濱工業大學, 碩士學位論文, 2014.
12. 張潔. 愛心、信心、耐心: 兒童癲癇長程管理的關鍵. 中華醫學信息導報, 2013, 28(12): 16-17.
13. Mittan RJ. Psychosocial treatment programs in epilepsy: a review. Epilepsy Behav, 2009, 16(3): 371-380.
14. Siqueira NF, Oliveira FL, Siqueira JA, et al. In adolescents with epilepsy, high scores of anxiety and depression are associated with occurrence of seizures in public places. Arquivos De Neuro-psiquiatria, 2015, 73(3): 205-211.
15. Austin JK, Shafer PO, Deering JB. Epilepsy familiarity, knowledge, and perceptions of stigma: report from a survey of adolescents in the general population. Epilepsy Behav, 2002, 3(4): 368-375.
16. Hixson JD, Barnes D, Parko K, et al. Patients optimizing epilepsy management via an online community: the POEM Study. Neurology, 2015, 85(2): 129-136.
17. Tattersall RL. The expert patient: a new approach to chronic disease management for the twenty-first century. Clinical Medicine, 2002, 2(3): 227-229.
18. 趙敬, 李貝. 微信公眾平臺發展現狀初探. 新聞實踐, 2013, 2013(8): 8-10.
19. 詹恂, 嚴星. 微信使用對人際傳播的影響研究. 中國傳媒大學學報, 2013, 2013(12): 112-117.
20. The Statistics Portal :Number of monthly active WeChat users from 2nd quarter 2011 to 2nd quarter 2016(in millions). http://www.statista.com/statistics/255778/number-of-active-wechat-messenger-accounts/.Accessed 2016.
21. Snape D, Wang W, Wu J, et al. Knowledge gaps and uncertainties about epilepsy: findings from an ethnographic study in China. Epilepsy Behav, 2009, 14(1): 172-178.
22. Wang W, Zhao D, Wu J, et al. Changes in knowledge, attitude, and practice of people with epilepsy and their families after an intervention in rural China. Epilepsy Behav, 2009, 16(1): 76-79.
23. 何小敏, 黃偉僑, 容穎慈. 規范藥物治療兒童癲癇的重要性. 中國實用醫藥, 2009, 4(36): 44-45.
24. Faught RE, Duh M, Weiner J, et al. Nonadherence to antiepileptic drugs and increased mortality: findings from the RANSOM Study. Neurology, 2008, 71(20): 1572-1578.
25. Faught RE, Weiner J, Guérin A, et al. Impact of nonadherence to antiepileptic drugs on health care utilization and costs: findings from the RANSOM study. Epilepsia, 2009, 50(3): 501-509.
26. 何小敏, 黃偉僑, 容穎慈. 規范藥物治療兒童癲癇的重要性. 中國實用醫藥, 2009, 4(36): 44-45.

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