Application of continuous nursing for school-age children with epilepsy based on timing theory_Journal of Epilepsy

Authors：

QIN Kaiqin ¹ ,  ZHU Lihong ² , ZHANG Linhui ³

1. Wuxi School of Medicine, Jiangnan University, Wuxi 214122, China;
2. Dean’s Office of hospital, Wuxi Children’s Hospital Affiliated to Jiangnan University, Wuxi 214122, China;
3. Department of Pediatric Neurology, Wuxi Children’s Hospital Affiliated to Jiangnan University, Wuxi 214122, China;

Corresponding?author：

ZHU Lihong, Email: zlhyfb@126.com

Keywords：

Timing it right; Continuous care; Epilepsy; School-age children

DOI：

10.7507/2096-0247.202312001

Video：

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Objective Based on “timing it right”, the application effect of the continuous nursing program in school-age children with epilepsy. Methods A total of 80 epileptic children and primary caregiver who were admitted to the Department of Neurology of Wuxi a third class A children’s hospital from October 2022 to March 2023 were selected as the research objects, and were divided into experimental group and control group with 40 cases each by convenience sampling. The control group was given routine care, and the intervention group was given a continuous nursing for school-age children with epilepsy based on timing theory. The continuous nursing process was divided into four stages: diagnosis stage, treatment stage,preparation stage, and convalescence stage.According to the needs of the different stages of the disease,In each stage,the intervention was carried out from disease cognition, emotional support, Correct care, psychological adjustment, rehabilitation training. TO Reduce the burden on caregivers and promote the recovery of patients. The results of Knowledge of the disease, burden of Caregiver and quality of life were compared between the two groups before intervention, before discharge and Three months after discharge through Epileptic disease health knowledge questionnaire, Zarit Care-giver Burden Interview, PedsQTM4.0. Results After intervention, The degree of seizures-related knowledge mastered by the main caregivers of children with epilepsy, the quality of life were significantly improved (all P<0.05). Conclusion The implementation of the continuity nursing plan based on the timing theory can improve the knowledge level of the main caregivers of epilepsy children, improve their caring ability, and improve the quality of life of epilepsy children.

Citation： QIN Kaiqin, ZHU Lihong, ZHANG Linhui. Application of continuous nursing for school-age children with epilepsy based on timing theory. Journal of Epilepsy, 2024, 10(1): 50-56. doi: 10.7507/2096-0247.202312001 Copy

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3.	張雯, 王玉梅, 祝文嬪. 醫院-社區-家庭三元聯動護理模式在癲癇患兒延續性護理中的應用. 中華現代護理雜志, 2019, 25(33): 4273-4276.
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8.	余祖琳. 基于賦能理論的情緒與壓力管理方案在癲癇患兒照顧者中的應用研究. 鄭州大學, 碩士學位論文, 2021.
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10.	孫文杰. 基于HBM和Orem自護理論的“四階段五維”護理干預在癲癇患兒主要照護者中的應用研究. 南昌大學醫學部, 碩士學位論文, 2021.
11.	DiBartolo MC. Caregiver burden. Instruments, challenges, and nursing implications for individuals with Alzheimer's disease and their caregivers. J Gerontol Nurs, 2000, 26(6): 46-53.
12.	王烈, 楊小湜, 侯哲, 等. 護理者負擔量表中文版的應用與評價. 中國公共衛生, 2006, 22(8): 970-972.
13.	李茹, 陳玲玲, 段曉俠, 等. 老年慢性病照顧者負擔與社會支持的關系. 中國老年學雜志, 2019, 39(7): 1753-1755.
14.	武曉紅, 李紅梅, 張俊, 等. 乳腺癌病人家庭照顧者心理適應現狀及其影響因素分析. 護理研究, 2022, 36(4): 645-649.
15.	蒲曉玲, 楊眉. 慢性阻塞性肺疾病患者照顧者負擔及影響因素分析. 預防學, 2019, 31(11): 1124-1127.
16.	盧奕云, 田琪, 郝元濤, 等. 兒童生存質量測定量表PedsQL4. 0中文版的信度和效度分析. 中山大學學報(醫學科學版), 2008, 29(3): 328-331.
17.	盧奕云, 郝元濤, 靜進, 等. 兒童生存質量測定量表PedsQLTM的結構及應用概況. 現代預防醫學, 2006, 33(5): 732-734.
18.	張姍, 盛桂梅, 朱應紅, 等. 兒童癲癇主要照顧者院外護理服務需求的質性研究. 齊魯護理雜志, 2020, 26(13): 13-16.
19.	李雙子, 張萍, 王婷, 等. 不同類型及年齡癲癇患兒家屬延續護理需求調查及分析. 循證護理, 2021, 7(7): 924-928.
20.	Gao Y, Tang X, Wen Y, et al. Effects of the hospital-community-family ternary linkage continuous nursing model on compliance, cognitive function, resilience, and quality of life for children withepilepsy: a retrospective study. Transl Pediatr, 2022, 11(2): 239-248.
21.	李曉宇. 家庭管理模式在癲癇患兒延續護理中的應用研究. 青島大學, 碩士學位論文, 2021.
22.	花倩, 周進芳. 癲癇患兒延續性護理服務需求研究進展. 中華現代護理雜志, 2021, 27(28): 3908-3911.
23.	王彥利, 徐艷, 孫娟, 等. 以奧馬哈系統理論為指導的延續性護理在癲癇患兒管理中的效果觀察. 護理實踐與研究, 2021, 18(15): 2289-2292.
24.	余祖琳, 潘月瑢, 余衛紅, 等. 癲癇兒童主要照顧者的積極心理品質、益處發現與照顧負擔的關系. 中國健康心理學雜志, 2022, 30(8): 1128-1132.
25.	溫旭, 鄧璐瑤, 曾珊, 等. 多站式延續性護理在學齡前癲癇患兒出院后主要照顧者中的應用. 齊魯護理雜志, 2021, 27(24): 37-39.
26.	閆晨歌, 賈天明, 張曉莉, 等. 癲癇患兒生存現狀及相關影響因素分析. 國際兒科學雜志, 2020, 47(4): 288-293.
27.	劉志敏, 桑琳霞, 李文玲, 等. 延續護理對耐藥性癲癇患兒術后生命質量和日常生活能力的影響. 護理研究, 2022, 36(16): 3000-3002.

1. Ali A. Global health: epilepsy. Seminars in Neurology, 2018, 38(2): 191-199.
2. 常琳, 王小姍. 中國癲癇流行病學調查研究進展. 國際神經病學神經外科學雜志, 2012, 39(2): 161-164.
3. 張雯, 王玉梅, 祝文嬪. 醫院-社區-家庭三元聯動護理模式在癲癇患兒延續性護理中的應用. 中華現代護理雜志, 2019, 25(33): 4273-4276.
4. Lavin B, Dormond C, Scantlebury MH, et al. Bridging the healthcare gap: building the case for epilepsy virtual clinics in the current healthcare environment. Epilepsy Behav, 2020, 111: 107262.
5. 西磊. 個體化延續性護理對癲癇患兒及家庭生活質量影響的研究. 內蒙古醫科大學, 碩士學位論文, 2019.
6. Cameron JI, Gignac MA. “Timing It Right”: a conceptual framework for addressing the support needs of family caregivers to stroke survivors from the hospital to the home. Patient Educ Couns, 2008, 70(3): 305-314.
7. Specchio N, Wirrell EC, Scheffer IE, et al. International League Against Epilepsy classification and definition of epilepsy syndromes with onset in childhood: Position paper by the ILAE Task Forceon Nosology and Definitions. Epilepsia, 2022, 63(6): 1398-1442.
8. 余祖琳. 基于賦能理論的情緒與壓力管理方案在癲癇患兒照顧者中的應用研究. 鄭州大學, 碩士學位論文, 2021.
9. 中華醫學會兒科學分會神經學組. 兒童癲癇長程管理專家共識. 中華兒科雜志, 2013, 51(9): 699-703.
10. 孫文杰. 基于HBM和Orem自護理論的“四階段五維”護理干預在癲癇患兒主要照護者中的應用研究. 南昌大學醫學部, 碩士學位論文, 2021.
11. DiBartolo MC. Caregiver burden. Instruments, challenges, and nursing implications for individuals with Alzheimer's disease and their caregivers. J Gerontol Nurs, 2000, 26(6): 46-53.
12. 王烈, 楊小湜, 侯哲, 等. 護理者負擔量表中文版的應用與評價. 中國公共衛生, 2006, 22(8): 970-972.
13. 李茹, 陳玲玲, 段曉俠, 等. 老年慢性病照顧者負擔與社會支持的關系. 中國老年學雜志, 2019, 39(7): 1753-1755.
14. 武曉紅, 李紅梅, 張俊, 等. 乳腺癌病人家庭照顧者心理適應現狀及其影響因素分析. 護理研究, 2022, 36(4): 645-649.
15. 蒲曉玲, 楊眉. 慢性阻塞性肺疾病患者照顧者負擔及影響因素分析. 預防學, 2019, 31(11): 1124-1127.
16. 盧奕云, 田琪, 郝元濤, 等. 兒童生存質量測定量表PedsQL4. 0中文版的信度和效度分析. 中山大學學報(醫學科學版), 2008, 29(3): 328-331.
17. 盧奕云, 郝元濤, 靜進, 等. 兒童生存質量測定量表PedsQLTM的結構及應用概況. 現代預防醫學, 2006, 33(5): 732-734.
18. 張姍, 盛桂梅, 朱應紅, 等. 兒童癲癇主要照顧者院外護理服務需求的質性研究. 齊魯護理雜志, 2020, 26(13): 13-16.
19. 李雙子, 張萍, 王婷, 等. 不同類型及年齡癲癇患兒家屬延續護理需求調查及分析. 循證護理, 2021, 7(7): 924-928.
20. Gao Y, Tang X, Wen Y, et al. Effects of the hospital-community-family ternary linkage continuous nursing model on compliance, cognitive function, resilience, and quality of life for children withepilepsy: a retrospective study. Transl Pediatr, 2022, 11(2): 239-248.
21. 李曉宇. 家庭管理模式在癲癇患兒延續護理中的應用研究. 青島大學, 碩士學位論文, 2021.
22. 花倩, 周進芳. 癲癇患兒延續性護理服務需求研究進展. 中華現代護理雜志, 2021, 27(28): 3908-3911.
23. 王彥利, 徐艷, 孫娟, 等. 以奧馬哈系統理論為指導的延續性護理在癲癇患兒管理中的效果觀察. 護理實踐與研究, 2021, 18(15): 2289-2292.
24. 余祖琳, 潘月瑢, 余衛紅, 等. 癲癇兒童主要照顧者的積極心理品質、益處發現與照顧負擔的關系. 中國健康心理學雜志, 2022, 30(8): 1128-1132.
25. 溫旭, 鄧璐瑤, 曾珊, 等. 多站式延續性護理在學齡前癲癇患兒出院后主要照顧者中的應用. 齊魯護理雜志, 2021, 27(24): 37-39.
26. 閆晨歌, 賈天明, 張曉莉, 等. 癲癇患兒生存現狀及相關影響因素分析. 國際兒科學雜志, 2020, 47(4): 288-293.
27. 劉志敏, 桑琳霞, 李文玲, 等. 延續護理對耐藥性癲癇患兒術后生命質量和日常生活能力的影響. 護理研究, 2022, 36(16): 3000-3002.

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